Development and validation of a novel personalized electronic patient-reported outcome measure to assess quality of life (Q-LIFE): a prospective observational study in people with Cystic FibrosisResearch in context

Development and validation of a novel personalized electronic patient-reported outcome measure to assess quality of life (Q-LIFE): a prospective observational study in people with Cystic FibrosisResearch in context

Summary: Background: Generic and disease-specific patient-reported outcome measures (PROMs) may lack relevance and sensitivity on a patient-level in chronic diseases with differential disease expression and high individual variability, such as Cystic Fibrosis (CF). This study aimed to develop and v...

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Bibliographic Details
Main Authors: Danya Muilwijk, Tessa J. van Paridon, Doris C. van der Heijden, Brenda M. Faber-Bisschop, Domenique D. Zomer-van Ommen, Harry G.M. Heijerman, Cornelis K. van der Ent
Format: Article
Language:English
Published: Elsevier 2023-08-01
Series:EClinicalMedicine
Subjects:
Cystic Fibrosis
Quality of life
Patient-reported outcome measures
Personalized medicine
Online Access:http://www.sciencedirect.com/science/article/pii/S2589537023002936

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http://www.sciencedirect.com/science/article/pii/S2589537023002936

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