Out of Compassion or Out of Rights? A Story about an Amyotrophic Lateral Sclerosis (ALS) Human Clinical Trial

This article examines the intersection of compassion and rights, and how the two concepts are constituted and wielded in the context of human clinical trials. Doron, an ALS patient who was recruited to a clinical trial, believed that he had the right to post-trial treatment according to the wording...

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Bibliographic Details
Main Author: Hedva Eyal
Format: Article
Language:English
Published: University of Edinburgh Library 2021-09-01
Series:Medicine Anthropology Theory
Subjects:
Online Access:http://www.medanthrotheory.org/article/view/5102