Information needs of parents of children with congenital anomalies across Europe: a EUROlinkCAT survey

Information needs of parents of children with congenital anomalies across Europe: a EUROlinkCAT survey

Abstract Background Parents of children who have a congenital anomaly can experience significant worry about their child’s health. Access to clear, helpful, and trustworthy information can provide a valuable source of support. In this study the aim was to explore the information needs of parents/car...

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Bibliographic Details
Main Authors: Elena Marcus, Anna Latos-Bielenska, Anna Jamry-Dziurla, Ingeborg Barišić, Clara Cavero-Carbonell, Elly Den Hond, Ester Garne, Lucas Genard, Ana João Santos, LRenée Lutke, Carlos Matias Dias, Christina Neergaard Pedersen, Amanda J. Neville, Annika Niemann, Ljubica Odak, Anna Pierini, Juan Rico, Anke Rissmann, Judith Rankin, Joan K. Morris
Format: Article
Language:English
Published: BMC 2022-11-01
Series:BMC Pediatrics
Subjects:
Congenital anomaly
Child
Information needs
Support
Survey
Questionnaire
Online Access:https://doi.org/10.1186/s12887-022-03734-z

Internet

https://doi.org/10.1186/s12887-022-03734-z

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