Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers’ perspectives

Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers’ perspectives

Abstract Background Juvenile localized scleroderma (LS) and systemic sclerosis (SSc) are rare pediatric conditions often associated with severe morbidities. Delays in diagnosis are common, increasing the risk for permanent damage and worse outcomes. This study explored caregiver perspectives on barr...

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Bibliographic Details
Main Authors: Leigh A. Stubbs, Andrew M. Ferry, Danielle Guffey, Christina Loccke, Erin Moriarty Wade, Pamela Pour, Kaveh Ardalan, Peter Chira, Ingrid M. Ganske, Daniel Glaser, Gloria Higgins, Nadia Luca, Katharine F. Moore, Vidya Sivaraman, Katie Stewart, Natalia Vasquez-Canizares, Raegan D. Hunt, Renata S. Maricevich, Kathryn S. Torok, Suzanne C. Li, Childhood Arthritis, Rheumatology Research Alliance (CARRA) Scleroderma Workgroup
Format: Article
Language:English
Published: BMC 2023-04-01
Series:Pediatric Rheumatology Online Journal
Subjects:
Localized scleroderma
Morphea
Systemic scleroderma
Health care disparities
Online Access:https://doi.org/10.1186/s12969-023-00819-6

Internet

https://doi.org/10.1186/s12969-023-00819-6

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