Establishing a framework for privacy-preserving record linkage among electronic health record and administrative claims databases within PCORnet®, the National Patient-Centered Clinical Research Network

Establishing a framework for privacy-preserving record linkage among electronic health record and administrative claims databases within PCORnet®, the National Patient-Centered Clinical Research Network

Abstract Objective The aim of this study was to determine whether a secure, privacy-preserving record linkage (PPRL) methodology can be implemented in a scalable manner for use in a large national clinical research network. Results We established the governance and technical capacity to support the...

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Bibliographic Details
Main Authors: Daniel Kiernan, Thomas Carton, Sengwee Toh, Jasmin Phua, Maryan Zirkle, Darcy Louzao, Kevin Haynes, Mark Weiner, Francisco Angulo, Charles Bailey, Jiang Bian, Daniel Fort, Shaun Grannis, Ashok Kumar Krishnamurthy, Vinit Nair, Pedro Rivera, Jonathan Silverstein, Keith Marsolo
Format: Article
Language:English
Published: BMC 2022-10-01
Series:BMC Research Notes
Subjects:
Medical record linkage
Multicenter studies
Patient data privacy
Online Access:https://doi.org/10.1186/s13104-022-06243-5

Internet

https://doi.org/10.1186/s13104-022-06243-5

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