Factors affecting pathways to care for children and adolescents with complex vascular malformations: parental perspectives

Factors affecting pathways to care for children and adolescents with complex vascular malformations: parental perspectives

Abstract Background Complex vascular malformations (VMs) are rare disorders that can cause pain, coagulopathy, disfigurement, asymmetric growth, and disability. Patients with complex VMs experience misdiagnosis, delayed diagnosis, delayed or inappropriate treatments, and worsened health. Given the p...

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Bibliographic Details
Main Authors: Bryan A. Sisk, Anna Kerr, Katherine A. King
Format: Article
Language:English
Published: BMC 2022-07-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Pediatrics
Vascular malformation
Vascular anomaly
Health care access
Communication
Rare disease
Online Access:https://doi.org/10.1186/s13023-022-02432-4

Internet

https://doi.org/10.1186/s13023-022-02432-4

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