Spinal muscular atrophy: health related quality of life and burden to parents

Objective: To analyze the relationship between the quality of life (QoL) of children and adolescents with Spinal Muscular Atrophy (SMA) and the burden on their parents. Methods: A cross-sectional study with 64 parents (53 women) of children and adolescents with SMA was conducted through an online q...

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Bibliographic Details
Main Authors: Lucas Sinesio Santos, Vinicius Lopes Silva, Vanessa Ariane Neves, Emmily Santos Ribeiro, Maria Heloyse Martins de Lima Silva, Gabriela Lopes Gama
Format: Article
Language:English
Published: Hospital de Clínicas de Itajubá 2022-12-01
Series:Revista Ciências em Saúde
Subjects:
Online Access:https://portalrcs.hcitajuba.org.br/index.php/rcsfmit_zero/article/view/1340