The current situation of hereditary angioedema patients in Germany: results of an online survey

The current situation of hereditary angioedema patients in Germany: results of an online survey

IntroductionHereditary angioedema (HAE) is a rare hereditary disease with an estimated prevalence of approximately 1 in 50,000.MethodsAn online survey was performed between January and June 2021 on a total of 99 HAE patients (with 92 of them aged 15 years and older and 7 of them being parents of pat...

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Bibliographic Details
Main Authors: Markus Magerl, Inmaculada Martinez-Saguer, Lucia Schauf, Sven Pohl, Klaus Brendel
Format: Article
Language:English
Published: Frontiers Media S.A. 2024-01-01
Series:Frontiers in Medicine
Subjects:
hereditary angioedema
burden of disease
long-term prophylaxis
quality of life
disease control
disease management
Online Access:https://www.frontiersin.org/articles/10.3389/fmed.2023.1274397/full

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https://www.frontiersin.org/articles/10.3389/fmed.2023.1274397/full

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