Who owns (or controls) health data?

The ongoing debate on secondary use of health data for research has been renewed by the passage of comprehensive data privacy laws that shift control from institutions back to the individuals on whom the data was collected. Rights-based data privacy laws, while lauded by individuals, are viewed as p...

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Bibliographic Details
Main Authors: Scott D. Kahn, Sharon F. Terry
Format: Article
Language:English
Published: Nature Portfolio 2024-02-01
Series:Scientific Data
Online Access:https://doi.org/10.1038/s41597-024-02982-1