Ethics and legal requirements for data linkage in 14 European countries for children with congenital anomalies

Ethics and legal requirements for data linkage in 14 European countries for children with congenital anomalies

Introduction Linking healthcare data sets can create valuable resources for research, particularly when investigating rare exposures or outcomes. However, across Europe, the permissions processes required to access data can be complex. This paper documents the processes required by the EUROlinkCAT s...

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Main Authors: Babak Khoshnood, David Tucker, Susan Jordan, Hanitra Randrianaivo, Maria Loane, Ingeborg Barisic, Miriam Gatt, Kari Klungsoyr, Anna Pierini, Anke Rissmann, Joan K Morris, Clara Cavero-Carbonell, Vera Nelen, Amanda J Neville, Ester Garne, Hermien de Walle, Carlos Dias, Wladimir Wertelecki, Joachim Tan, Hugh Claridge, Sonja Kiuru-Kuhlefelt, Olatz Mokoroa Carollo
Format: Article
Language:English
Published: BMJ Publishing Group 2023-07-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/13/7/e071687.full

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https://bmjopen.bmj.com/content/13/7/e071687.full

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