Prescribing issues experienced by people living with phenylketonuria in the UKVerbatim extracts from parents and caregivers responses about delivery serviceVerbatim extracts about lack of co-ordinationVerbatim extracts about difficulty with specific low protein foodsVerbatim extracts about running out of low protein foodVerbatim extracts about GP related issuesVerbatim extracts about stress and hassle associated with dietary prescriptionsVerbatim extracts about issues with ordering LPFVerbatim extracts about issues with food supply affecting adherenceVerbatim extracts about ignorance of PKU
Background: Foods for Special Medical purposes (Phe-free protein substitutes [PS] and low protein foods [LPFs]) are central to successful dietary management of patients with phenylketonuria (PKU). In the UK, PS and LPFs are prescribed by primary care general practitioners (GPs) and dispensed by high...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
| Published: |
Elsevier
2019-12-01
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| Series: | Molecular Genetics and Metabolism Reports |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2214426919301260 |