“Taking part in the project has really changed our experience as a family” investigating parents’ experience of participation in a study to screen for fetal alcohol spectrum disorder

Background: Screening children for developmental disorders presents unique ethical and methodological challenges, particularly with disorders associated with high levels of shame and stigma. Fetal alcohol spectrum disorder (FASD) is a neurodevelopmental condition resulting from prenatal alcohol expo...

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Bibliographic Details
Main Authors: Robyn McCarthy, Carolyn Blackburn, Raja AS. Mukherjee, Clare S. Allely, Penny A. Cook
Format: Article
Language:English
Published: Elsevier 2024-05-01
Series:Heliyon
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S2405844024061073