The experiences of patients with Duchenne muscular dystrophy in facing and learning about their clinical conditions

Patients experience extreme difficulty when facing an intractable genetic disease. Herein, we examine the experiences of patients with Duchenne muscular dystrophy in facing and learning about their disease. A total of seven patients with Duchenne muscular dystrophy (age range: 20–48) participated. W...

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Bibliographic Details
Main Authors: Haruo Fujino, Yuko Iwata, Toshio Saito, Tsuyoshi Matsumura, Harutoshi Fujimura, Osamu Imura
Format: Article
Language:English
Published: Taylor & Francis Group 2016-10-01
Series:International Journal of Qualitative Studies on Health & Well-Being
Subjects:
Online Access:http://www.ijqhw.net/index.php/qhw/article/view/32045/49043