Extending the CARE Principles from tribal research policies to benefit sharing in genomic research

Extending the CARE Principles from tribal research policies to benefit sharing in genomic research

Indigenous Peoples have historically been targets of extractive research that has led to little to no benefit. In genomics, such research not only exposes communities to harms and risks of misuse, but also deprives such communities of potential benefits. Tribes in the US have been exercising their s...

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Bibliographic Details
Main Authors: Stephanie Russo Carroll, Rebecca Plevel, Lydia L. Jennings, Ibrahim Garba, Rogena Sterling, Felina M. Cordova-Marks, Vanessa Hiratsuka, Maui Hudson, Nanibaa’ A. Garrison
Format: Article
Language:English
Published: Frontiers Media S.A. 2022-11-01
Series:Frontiers in Genetics
Subjects:
research policy
indigenous
data sovereignty
data governance
care principles
Online Access:https://www.frontiersin.org/articles/10.3389/fgene.2022.1052620/full

Internet

https://www.frontiersin.org/articles/10.3389/fgene.2022.1052620/full

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