Adjustment to disease and quality of life in people with vascular Ehlers-Danlos and Loeys-Dietz syndromes: A mixed-method study

Adjustment to disease and quality of life in people with vascular Ehlers-Danlos and Loeys-Dietz syndromes: A mixed-method study

BackgroundVascular Ehlers-Danlos (vEDS) and Loeys-Dietz syndromes (LDS) are hereditary disorders of connective tissue having severe vascular complications (HDCTv) which lead to an increased risk of premature death. Little is known about the impact of the disease in patient’s daily life.MethodSixteen...

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Bibliographic Details
Main Authors: Carolina Baeza-Velasco, Nuria Rodriguez, Laura Parra, Teresa Gutiérrez-Rosado
Format: Article
Language:English
Published: Frontiers Media S.A. 2023-02-01
Series:Frontiers in Psychology
Subjects:
Ehlers-Danlos sydromes
Loeys-Dietz syndrome
psychosocial adjustment
quality of life
anxiety
depression
Online Access:https://www.frontiersin.org/articles/10.3389/fpsyg.2023.1019863/full

Internet

https://www.frontiersin.org/articles/10.3389/fpsyg.2023.1019863/full

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