Development of Novel Patient-Reported Outcome (PRO) and Observer-Reported Outcome (ObsRO) Instruments in Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA): ViSIO-PRO and ViSIO-ObsRO

Development of Novel Patient-Reported Outcome (PRO) and Observer-Reported Outcome (ObsRO) Instruments in Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA): ViSIO-PRO and ViSIO-ObsRO

Abstract Introduction Retinitis pigmentosa (RP) and Leber congenital amaurosis (LCA) are rare inherited retinal degenerative disorders resulting in visual impairments and impacts on patients’ vision-dependent activities of daily living (ADL), mobility and distal health-related quality of life (HRQoL...

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Bibliographic Details
Main Authors: Isabelle Audo, Francesco Patalano, Christel Naujoks, Claudio Spera, M. Dominik Fischer, Jane Green, Christine Kay, Todd Durham, Nicola Williamson, Helena Bradley, Melissa Barclay, Kieran Boparai, Judit Banhazi
Format: Article
Language:English
Published: Adis, Springer Healthcare 2023-05-01
Series:Ophthalmology and Therapy
Subjects:
Clinical outcome assessment
Health-related quality of life
Inherited retinal degenerations
Leber congenital amaurosis
Observer-reported outcome
Patient-reported outcome
Online Access:https://doi.org/10.1007/s40123-023-00724-x

Internet

https://doi.org/10.1007/s40123-023-00724-x

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