Clinical Practice Guideline for Adolescent & Adult Patients with Spinal Muscular Atrophy

Clinical Practice Guideline for Adolescent & Adult Patients with Spinal Muscular Atrophy

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In recent years, spinal muscular atrophy (SMA) has made progress in multidisciplinary treatment and disease-modifying therapeutic drugs, so that the progress has significantly improved the survival and quality of life of the patients. However, no clinical practice guideline has developed for the man...

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Bibliographic Details
Main Authors: Rare Disease Society of Chinese Research Hospital Association, China Alliance for Rare Diseases, Beijing Society of Rare Disease Clinical Care and Accessibility, China Expert Group for Clinical Practice Guideline for Adolescent & Adult Patients with Spinal Muscular Atrophy
Format: Article
Language:zho
Published: Editorial Office of Journal of Rare Diseases 2023-04-01
Series:罕见病研究
Subjects:
spinal muscular atrophy
diagnosis
multidisciplinary treatment
disease modifying therapy
Online Access:https://jrd.chard.org.cn/article/doi/10.12376/j.issn.2097-0501.2023.02.010

Internet

https://jrd.chard.org.cn/article/doi/10.12376/j.issn.2097-0501.2023.02.010

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