Assessment of Stakeholder Engagement in a Down Syndrome Research Study

There is growing recognition of the importance of engaging patients early in the design of research studies. For studies involving patients with intellectual and cognitive disabilities, researchers may consider engaging with family caregivers, health professionals, community advocates, and/or subjec...

Full description

Bibliographic Details
Main Authors: Jeanhee Chung, Ashwini Sarathy, Yichuan Grace Hsieh, Greg Estey, Amy Torres, Vasiliki Patsiogiannis, Karen Donelan, Brian G. Skotko
Format: Article
Language:English
Published: Advocate Aurora Health 2021-01-01
Series:Journal of Patient-Centered Research and Reviews
Subjects:
Online Access:https://institutionalrepository.aah.org/cgi/viewcontent.cgi?article=1777&context=jpcrr