Assessment of Stakeholder Engagement in a Down Syndrome Research Study
There is growing recognition of the importance of engaging patients early in the design of research studies. For studies involving patients with intellectual and cognitive disabilities, researchers may consider engaging with family caregivers, health professionals, community advocates, and/or subjec...
Main Authors: | Jeanhee Chung, Ashwini Sarathy, Yichuan Grace Hsieh, Greg Estey, Amy Torres, Vasiliki Patsiogiannis, Karen Donelan, Brian G. Skotko |
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Format: | Article |
Language: | English |
Published: |
Advocate Aurora Health
2021-01-01
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Series: | Journal of Patient-Centered Research and Reviews |
Subjects: | |
Online Access: | https://institutionalrepository.aah.org/cgi/viewcontent.cgi?article=1777&context=jpcrr |
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