Disclosure of individual research results at federally funded Alzheimer's Disease Research Centers

Disclosure of individual research results at federally funded Alzheimer's Disease Research Centers

Abstract Introduction This study describes practices for disclosing individual research results to participants in Alzheimer's disease research. Methods An online survey of clinical core leaders at National Institutes of Health‐funded Alzheimer's Disease Research Centers in the United Stat...

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Bibliographic Details
Main Authors: J. Scott Roberts, Rebecca Ferber, Deborah Blacker, Malia Rumbaugh, Joshua D. Grill, for the Advisory Group on Risk Evidence Education for Dementia (AGREED)
Format: Article
Language:English
Published: Wiley 2021-01-01
Series:Alzheimer’s & Dementia: Translational Research & Clinical Interventions
Subjects:
biomarkers
genetic testing
research ethics
return of research results
risk communication
Online Access:https://doi.org/10.1002/trc2.12213

Internet

https://doi.org/10.1002/trc2.12213

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