Direct letters to relatives at risk of hereditary cancer—study protocol for a multi-center randomized controlled trial of healthcare-assisted versus family-mediated risk disclosure at Swedish cancer genetics clinics (DIRECT-study)

Direct letters to relatives at risk of hereditary cancer—study protocol for a multi-center randomized controlled trial of healthcare-assisted versus family-mediated risk disclosure at Swedish cancer genetics clinics (DIRECT-study)

Abstract Background The results of germline genetic testing for hereditary cancer are of importance not only to the patients under investigation but also to their genetic at-risk relatives. Standard care is to encourage the proband (first family member under investigation) to pass on this risk infor...

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Bibliographic Details
Main Authors: Carolina Hawranek, Hans Ehrencrona, Anna Öfverholm, Barbro Numan Hellquist, Anna Rosén
Format: Article
Language:English
Published: BMC 2023-12-01
Series:Trials
Subjects:
Hereditary breast and ovarian cancer
Genetic testing
Lynch syndrome
Randomized controlled trial
Cancer prevention
Risk disclosure
Online Access:https://doi.org/10.1186/s13063-023-07829-5

Internet

https://doi.org/10.1186/s13063-023-07829-5

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