Characterization of health concerns in people with neurofibromatosis type 1

Abstract Background Neurofibromatosis 1 (NF1) is a common cancer predisposition syndrome. Affected individuals require lifelong surveillance and often suffer progressive disfigurement due to cutaneous neurofibromas. The aim of this research was to characterize health concerns and quality of life (QO...

Full description

Bibliographic Details
Main Authors: Jane Fleming, Oliver Morgan, Claire Wong, Timothy E. Schlub, Yemima Berman
Format: Article
Language:English
Published: Wiley 2023-01-01
Series:Molecular Genetics & Genomic Medicine
Subjects:
Online Access:https://doi.org/10.1002/mgg3.2077