Race in health research: Considerations for researchers and research ethics committees

This article provides ethical guidance on using race in health research as a variable or in defining the study population. To this end, a plain, non-exhaustive checklist is provided for researchers and research ethics committees, preceded by a brief introduction on the need for justification when us...

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Main Authors: W Van Staden, A Nienaber, T Rossouw, A Turner, C Filmalter, A E Mercier, J G Nel, B Bapela, M M Beetge, R Blumenthal, C D V Castelyn, T W de Witt, A G Dlagnekova, C Kotze, J S Mangwane, L Napoles, R Sommers, L Sykes, W B van Zyl, M Venter, A Uys, N Warren
Format: Article
Language:English
Published: South African Medical Association 2023-05-01
Series:South African Journal of Bioethics and Law
Online Access:https://samajournals.co.za/index.php/sajbl/article/view/440
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author W Van Staden
A Nienaber
T Rossouw
A Turner
C Filmalter
A E Mercier
J G Nel
B Bapela
M M Beetge
R Blumenthal
C D V Castelyn
T W de Witt
A G Dlagnekova
C Kotze
J S Mangwane
L Napoles
R Sommers
L Sykes
W B van Zyl
M Venter
A Uys
N Warren
author_facet W Van Staden
A Nienaber
T Rossouw
A Turner
C Filmalter
A E Mercier
J G Nel
B Bapela
M M Beetge
R Blumenthal
C D V Castelyn
T W de Witt
A G Dlagnekova
C Kotze
J S Mangwane
L Napoles
R Sommers
L Sykes
W B van Zyl
M Venter
A Uys
N Warren
author_sort W Van Staden
collection DOAJ
description This article provides ethical guidance on using race in health research as a variable or in defining the study population. To this end, a plain, non-exhaustive checklist is provided for researchers and research ethics committees, preceded by a brief introduction on the need for justification when using race as a variable or in defining a study population, the problem of exoticism, that distinctions pertain between race, ethnicity and ancestry, the problematic naming of races, and that race does not serve well as a presumed biological construct in genetic research.
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publishDate 2023-05-01
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spelling doaj.art-c4c780cdf5134d41863dca9417ea80e32024-02-03T06:51:56ZengSouth African Medical AssociationSouth African Journal of Bioethics and Law1999-76392023-05-0116191210.7196/SAJBL.2023.v16i1.440444Race in health research: Considerations for researchers and research ethics committeesW Van Staden0A Nienaber1T Rossouw2A Turner3C Filmalter4A E Mercier5J G Nel6B Bapela7M M Beetge8R Blumenthal9C D V Castelyn10T W de Witt11A G Dlagnekova12C Kotze13J S Mangwane14L Napoles15R Sommers16L Sykes17W B van Zyl18M Venter19A Uys20N Warren21a:1:{s:5:"en_US";s:75:"Centre for Ethics and Philosophy of Health Sciences, University of Pretoria";}Faculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaFaculty of Health Sciences Research Ethics Committee, University of Pretoria, South AfricaThis article provides ethical guidance on using race in health research as a variable or in defining the study population. To this end, a plain, non-exhaustive checklist is provided for researchers and research ethics committees, preceded by a brief introduction on the need for justification when using race as a variable or in defining a study population, the problem of exoticism, that distinctions pertain between race, ethnicity and ancestry, the problematic naming of races, and that race does not serve well as a presumed biological construct in genetic research.https://samajournals.co.za/index.php/sajbl/article/view/440
spellingShingle W Van Staden
A Nienaber
T Rossouw
A Turner
C Filmalter
A E Mercier
J G Nel
B Bapela
M M Beetge
R Blumenthal
C D V Castelyn
T W de Witt
A G Dlagnekova
C Kotze
J S Mangwane
L Napoles
R Sommers
L Sykes
W B van Zyl
M Venter
A Uys
N Warren
Race in health research: Considerations for researchers and research ethics committees
South African Journal of Bioethics and Law
title Race in health research: Considerations for researchers and research ethics committees
title_full Race in health research: Considerations for researchers and research ethics committees
title_fullStr Race in health research: Considerations for researchers and research ethics committees
title_full_unstemmed Race in health research: Considerations for researchers and research ethics committees
title_short Race in health research: Considerations for researchers and research ethics committees
title_sort race in health research considerations for researchers and research ethics committees
url https://samajournals.co.za/index.php/sajbl/article/view/440
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