Quality of life and informal care burden associated with duchenne muscular dystrophy in Portugal: the COIDUCH study

Quality of life and informal care burden associated with duchenne muscular dystrophy in Portugal: the COIDUCH study

Abstract Background To describe the reduced health-related quality of life (HRQoL) of duchenne muscular dystrophy (DMD) patients and their caregiver burden and to present its relationship with disease progression. Methods This cross-sectional study assessed patient HRQoL with the 3-level version of...

Full description

Bibliographic Details
Main Authors: Valeska Andreozzi, Pedro Labisa, Melina Mota, Susana Monteiro, Rita Alves, João Almeida, Björn Vandewalle, Jorge Felix, Katharina Buesch, Hugo Canhão, Igor Beitia Ortiz de Zarate
Format: Article
Language:English
Published: BMC 2022-03-01
Series:Health and Quality of Life Outcomes
Subjects:
Duchenne muscular dystrophy
Disease progression
Quality of life
Informal care burden
Online Access:https://doi.org/10.1186/s12955-022-01941-x

Internet

https://doi.org/10.1186/s12955-022-01941-x

Similar Items