User-Centered Development and Testing of the Online Patient-Reported Outcomes, Burdens, and Experiences (PROBE) Survey and the myPROBE App and Integration With the Canadian Bleeding Disorder Registry: Mixed Methods Study

User-Centered Development and Testing of the Online Patient-Reported Outcomes, Burdens, and Experiences (PROBE) Survey and the myPROBE App and Integration With the Canadian Bleeding Disorder Registry: Mixed Methods Study

BackgroundThe Patient-Reported Outcomes, Burdens, and Experiences (PROBE) questionnaire is a tool for assessing the quality of life and disease burden in people living with hemophilia. ObjectiveThe objectives of our study were (1) to assess the needs of relevant s...

Full description

Bibliographic Details
Main Authors: Federico Germini, Victoria Borg Debono, David Page, Victoria Zuk, Alexandra Kucher, Chris Cotoi, Nicholas Hobson, Michael Sevestre, Mark W Skinner, Alfonso Iorio
Format: Article
Language:English
Published: JMIR Publications 2022-03-01
Series:JMIR Human Factors
Online Access:https://humanfactors.jmir.org/2022/1/e30797

Internet

https://humanfactors.jmir.org/2022/1/e30797

Similar Items