Generic PROMIS item banks in adults with hemophilia for patient‐reported outcome assessment: Feasibility, measurement properties, and relevance

Generic PROMIS item banks in adults with hemophilia for patient‐reported outcome assessment: Feasibility, measurement properties, and relevance

Abstract Background Legacy hemophilia‐specific questionnaires are considered too long, show floor‐/ceiling effects, and/or include irrelevant questions. Patient Reported Outcomes Measurement Information System (PROMIS) item banks, including Computer Adaptive Tests (CATs) and short forms, were design...

Full description

Bibliographic Details
Main Authors: Isolde A. R. Kuijlaars, Lorynn Teela, Lize F. D. vanVulpen, Merel A. Timmer, Michiel Coppens, Samantha C. Gouw, Marjolein Peters, Marieke J. H. A. Kruip, Marjon H. Cnossen, Jelmer J. Muis, Evelien S. vanHoorn, Lotte Haverman, Kathelijn Fischer
Format: Article
Language:English
Published: Elsevier 2021-12-01
Series:Research and Practice in Thrombosis and Haemostasis
Subjects:
hemophilia
patient‐reported outcome
questionnaire
reliability
validity
Online Access:https://doi.org/10.1002/rth2.12621

Internet

https://doi.org/10.1002/rth2.12621

Similar Items