Developing a survey instrument to assess the readiness of primary care data, genetic and disease registries to conduct linked research: TRANSFoRm International Research Readiness (TIRRE) survey instrument

Developing a survey instrument to assess the readiness of primary care data, genetic and disease registries to conduct linked research: TRANSFoRm International Research Readiness (TIRRE) survey instrument

<p><strong>Background</strong> Clinical data are collected for routine care in family practice; there are also a growing number of genetic and cancer registry data repositories. The Translational Research and Patient Safety in Europe (TRANSFoRm) project seeks to facilitate research...

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Bibliographic Details
Main Authors: Emily Leppenwell, Simon de Lusignan, Marilia Tristan Vicente, Georgios Michalakidis, Paul Krause, Steve Thompson, Mark McGilchrist, Terry Desombre, Adel Taweel, Brendan Delaney
Format: Article
Language:English
Published: BCS, The Chartered Institute for IT 2013-05-01
Series:Journal of Innovation in Health Informatics
Subjects:
computerised medical record systems
data collection
diabetes mellitus
general practice
genetic databases
medical informatics
oesophageal diseases
primary health care
registries
Online Access:http://hijournal.bcs.org/index.php/jhi/article/view/26

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http://hijournal.bcs.org/index.php/jhi/article/view/26

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