Needs of amyloidosis patients and their care providers: design & first results of the  AMY-NEEDS research and care program

Needs of amyloidosis patients and their care providers: design & first results of the  AMY-NEEDS research and care program

Abstract Background Amyloidosis represents a rare yet heterogeneous multi-system disorder associated with a grave prognosis and an enormous psycho-emotional strain on patients, relatives, and caregivers. We here present the overall study design and first results of AMY-NEEDS, a research program aimi...

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Bibliographic Details
Main Authors: Sandra Michaela Ihne-Schubert, Teresa Radovic, Saskia Fries, Stefan Frantz, Hermann Einsele, Stefan Störk, Silke Neuderth
Format: Article
Language:English
Published: BMC 2024-02-01
Series:Orphanet Journal of Rare Diseases
Subjects:
amyloidosis
needs
amyloidosis-specific care concept
AMY-NEEDS
AmyKoS
Online Access:https://doi.org/10.1186/s13023-024-03052-w

Internet

https://doi.org/10.1186/s13023-024-03052-w

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