ERN CRANIO patient coverage of craniosynostosis in Europe

Abstract Background Against the backdrop of the European Directive on patients’ rights in cross-border healthcare, 24 European Reference Networks (ERNs) were launched in 2017. ERNs are networks of specialised hospitals working together to support patients with rare and/or complex diseases. ERN CRANI...

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Bibliographic Details
Main Authors: O. Spivack, L. Gaillard, ERN CRANIO hospital representatives
Format: Article
Language:English
Published: BMC 2022-09-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Online Access:https://doi.org/10.1186/s13023-022-02475-7