Increasing access to specialty care for rare diseases: a case study using a foundation sponsored clinic network for patients with neurofibromatosis 1, neurofibromatosis 2, and schwannomatosis

Increasing access to specialty care for rare diseases: a case study using a foundation sponsored clinic network for patients with neurofibromatosis 1, neurofibromatosis 2, and schwannomatosis

Abstract Background Our primary aim was to assess the ability of a non-profit foundation-sponsored clinic network to facilitate access to specialized care for patients with neurofibromatoses (NF), a group of neurogenetic disorders including NF1, NF2, and schwannomatosis (SWN). Our secondary aim was...

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Bibliographic Details
Main Authors: Vanessa L. Merker, Annie Dai, Heather B. Radtke, Pamela Knight, Justin T. Jordan, Scott R. Plotkin
Format: Article
Language:English
Published: BMC 2018-08-01
Series:BMC Health Services Research
Subjects:
Neurofibromatosis
Schwannomatosis
Rare diseases
Health service research
Health services accessibility
Healthcare disparities
Online Access:http://link.springer.com/article/10.1186/s12913-018-3471-5

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http://link.springer.com/article/10.1186/s12913-018-3471-5

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