Evaluating parental personal utility of pediatric genetic and genomic testing in a diverse, multilingual population

Evaluating parental personal utility of pediatric genetic and genomic testing in a diverse, multilingual population

Summary: There is increasing evidence of the clinical utility of genetic and genomic testing (GT); however, factors influencing personal utility of GT, especially in diverse, multilingual populations, remain unclear. We explored these factors in a diverse cohort of parents/guardians (participants) w...

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Bibliographic Details
Main Authors: Priya N. Marathe, Sabrina A. Suckiel, Katherine E. Bonini, Nicole R. Kelly, Laura Scarimbolo, Beverly J. Insel, Jacqueline A. Odgis, Monisha Sebastin, Michelle A. Ramos, Miranda Di Biase, Katie M. Gallagher, Kaitlyn Brown, Jessica E. Rodriguez, Nicole Yelton, Karla Lopez Aguiñiga, Michelle A. Rodriguez, Estefany Maria, Jessenia Lopez, Randi E. Zinberg, George A. Diaz, John M. Greally, Noura S. Abul-Husn, Laurie J. Bauman, Bruce D. Gelb, Melissa P. Wasserstein, Eimear E. Kenny, Carol R. Horowitz
Format: Article
Language:English
Published: Elsevier 2024-07-01
Series:HGG Advances
Subjects:
genomic testing
pediatric genetic testing
personal utility
parents
diversity
genetic testing
Online Access:http://www.sciencedirect.com/science/article/pii/S2666247724000605

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http://www.sciencedirect.com/science/article/pii/S2666247724000605

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