Evaluating case management for caregivers of children with spinal muscular atrophy type I and II—an exploratory, controlled, mixed-methods trial

Evaluating case management for caregivers of children with spinal muscular atrophy type I and II—an exploratory, controlled, mixed-methods trial

IntroductionSpinal muscular atrophy (SMA) is a rare neuromuscular disease requiring various clinical specialists and therapists to provide care. Due to the disease's dynamic nature and the long distances between specialized centers and local providers, integrating care between disciplines can b...

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Bibliographic Details
Main Authors: Jana Willems, Astrid Pechmann, Sabine Wider, Rita Ambs, Sylvia A. N. Meyer, Isabel Cascante, Joachim Sproß, Annette Mund, Erik Farin-Glattacker, Thorsten Langer
Format: Article
Language:English
Published: Frontiers Media S.A. 2023-09-01
Series:Frontiers in Pediatrics
Subjects:
case management
rare diseases
spinal muscular atrophy
integrated care
health-related quality of life
Online Access:https://www.frontiersin.org/articles/10.3389/fped.2023.1212012/full

Internet

https://www.frontiersin.org/articles/10.3389/fped.2023.1212012/full

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