Multidisciplinary approach for patients with nephropathic cystinosis: model for care in a rare and chronic renal disease
Abstract Care for patients with chronic and rare diseases is complex, especially considering the lack of knowledge about the disease, which makes early and precise diagnosis difficult, as well as the need for specific tests, sometimes of high complexity and cost. Added to these factors are difficult...
Main Authors: | , , , , , , |
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Format: | Article |
Language: | English |
Published: |
Sociedade Brasileira de Nefrologia
2018-11-01
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Series: | Brazilian Journal of Nephrology |
Subjects: | |
Online Access: | http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0101-28002018005041103&lng=en&tlng=en |