Enhancing evidence-informed policymaking in medicine and healthcare: stakeholder involvement in the Commons Project for rare diseases in Japan

Enhancing evidence-informed policymaking in medicine and healthcare: stakeholder involvement in the Commons Project for rare diseases in Japan

Abstract Background Although stakeholder involvement in policymaking is attracting attention in the fields of medicine and healthcare, a practical methodology has not yet been established. Rare-disease policy, specifically research priority setting for the allocation of limited research resources, i...

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Main Authors: Atsushi Kogetsu, Moeko Isono, Tatsuki Aikyo, Junichi Furuta, Dai Goto, Nao Hamakawa, Michihiro Hide, Risa Hori, Noriko Ikeda, Keiko Inoi, Naomi Kawagoe, Tomoya Kubota, Shirou Manabe, Yasushi Matsumura, Koji Matsuyama, Tomoko Nakai, Ikuko Nakao, Yuki Saito, Midori Senoo, Masanori P. Takahashi, Toshihiro Takeda, Megumi Takei, Katsuto Tamai, Akio Tanaka, Yasuhiro Torashima, Yuya Tsuchida, Chisato Yamasaki, Beverley Anne Yamamoto, Kazuto Kato
Format: Article
Language:English
Published: BMC 2023-11-01
Series:Research Involvement and Engagement
Subjects:
Rare-disease policy
Priority setting
Stakeholder involvement
Patient involvement
Patient and public involvement (PPI)
Evidence generation
Online Access:https://doi.org/10.1186/s40900-023-00515-5

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https://doi.org/10.1186/s40900-023-00515-5

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