Psychological conditions of caregivers of adult subjects with Prader-Willi syndrome

Psychological conditions of caregivers of adult subjects with Prader-Willi syndrome

Abstract Background Prader-Willi syndrome (PWS) is a rare genetic neurodevelopmental disorder. Individuals with PWS face a range of cognitive, behavioral, and emotional challenges that require comprehensive and lifelong care, posing significant demands on their caregivers. The study is not only aime...

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Bibliographic Details
Main Authors: Anna Guerrini Usubini, Adele Bondesan, Diana Caroli, Francesca Frigerio, Graziano Grugni, Gianluca Castelnuovo, Alessandro Sartorio
Format: Article
Language:English
Published: BMC 2024-10-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Prader-Willi syndrome
Caregivers
Psychological distress
Psychological well-being
Coping
Online Access:https://doi.org/10.1186/s13023-024-03385-6

Internet

https://doi.org/10.1186/s13023-024-03385-6

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