Survival of children with rare structural congenital anomalies: a multi-registry cohort study

Survival of children with rare structural congenital anomalies: a multi-registry cohort study

Abstract Background Congenital anomalies are the leading cause of perinatal, neonatal and infant mortality in developed countries. Large long-term follow-up studies investigating survival beyond the first year of life in children with rare congenital anomalies are costly and sufficiently large stand...

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Main Authors: Alessio Coi, Michele Santoro, Anna Pierini, Judith Rankin, Svetlana V. Glinianaia, Joachim Tan, Abigail-Kate Reid, Ester Garne, Maria Loane, Joanne Given, Elisa Ballardini, Clara Cavero-Carbonell, Hermien E. K. de Walle, Miriam Gatt, Laura García-Villodre, Mika Gissler, Sue Jordan, Sonja Kiuru-Kuhlefelt, Stine Kjaer Urhoj, Kari Klungsøyr, Nathalie Lelong, L. Renée Lutke, Amanda J. Neville, Makan Rahshenas, Ieuan Scanlon, Diana Wellesley, Joan K. Morris
Format: Article
Language:English
Published: BMC 2022-03-01
Series:Orphanet Journal of Rare Diseases
Online Access:https://doi.org/10.1186/s13023-022-02292-y

Internet

https://doi.org/10.1186/s13023-022-02292-y

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