Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic

BackgroundThe COVID-19 pandemic uniquely affects patients with neurologic and developmental disabilities at the Kennedy Krieger Institute. These patients are at increased risk of co-morbidities, increasing their risk of contracting COVID-19. Disruptions in their home and school routines, and restric...

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Main Authors: Pooja Vedmurthy, Connor Murray, Belinda Chen, Akua Asiedu, Kristin Baranano, Mihee Bay, Harolyn Belcher, Vera Burton, Charles Conlon, Amena Fine, Ryan Gill, Jacqueline Harris, Khaylynn Hart, Shannon Inches, Jennifer Johnson, Eboni Lance, Paul H. Lipkin, Deepa U. Menon, Tiffany McIntyre, Meghna Rajaprakash, Albert Recio, Harvey S. Singer, Lindsay Smegal, Constance L. Smith-Hicks, Hilary Vernon, Anna Maria Wilms Floet, Joyce Wong, Karina Yelin, Mary L. O’Connor Leppert, T. Andrew Zabel, Anne M. Comi
Format: Article
Language:English
Published: Frontiers Media S.A. 2022-10-01
Series:Frontiers in Rehabilitation Sciences
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/fresc.2022.934558/full
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author Pooja Vedmurthy
Pooja Vedmurthy
Connor Murray
Connor Murray
Belinda Chen
Akua Asiedu
Kristin Baranano
Mihee Bay
Mihee Bay
Mihee Bay
Harolyn Belcher
Harolyn Belcher
Harolyn Belcher
Harolyn Belcher
Harolyn Belcher
Vera Burton
Charles Conlon
Amena Fine
Amena Fine
Ryan Gill
Ryan Gill
Ryan Gill
Jacqueline Harris
Jacqueline Harris
Jacqueline Harris
Jacqueline Harris
Khaylynn Hart
Khaylynn Hart
Khaylynn Hart
Shannon Inches
Shannon Inches
Jennifer Johnson
Jennifer Johnson
Eboni Lance
Eboni Lance
Eboni Lance
Paul H. Lipkin
Paul H. Lipkin
Paul H. Lipkin
Deepa U. Menon
Deepa U. Menon
Deepa U. Menon
Deepa U. Menon
Tiffany McIntyre
Tiffany McIntyre
Meghna Rajaprakash
Meghna Rajaprakash
Albert Recio
Albert Recio
Harvey S. Singer
Harvey S. Singer
Harvey S. Singer
Lindsay Smegal
Lindsay Smegal
Constance L. Smith-Hicks
Constance L. Smith-Hicks
Hilary Vernon
Hilary Vernon
Anna Maria Wilms Floet
Anna Maria Wilms Floet
Joyce Wong
Joyce Wong
Joyce Wong
Karina Yelin
Karina Yelin
Mary L. O’Connor Leppert
Mary L. O’Connor Leppert
Mary L. O’Connor Leppert
Mary L. O’Connor Leppert
T. Andrew Zabel
T. Andrew Zabel
Anne M. Comi
Anne M. Comi
Anne M. Comi
Anne M. Comi
author_facet Pooja Vedmurthy
Pooja Vedmurthy
Connor Murray
Connor Murray
Belinda Chen
Akua Asiedu
Kristin Baranano
Mihee Bay
Mihee Bay
Mihee Bay
Harolyn Belcher
Harolyn Belcher
Harolyn Belcher
Harolyn Belcher
Harolyn Belcher
Vera Burton
Charles Conlon
Amena Fine
Amena Fine
Ryan Gill
Ryan Gill
Ryan Gill
Jacqueline Harris
Jacqueline Harris
Jacqueline Harris
Jacqueline Harris
Khaylynn Hart
Khaylynn Hart
Khaylynn Hart
Shannon Inches
Shannon Inches
Jennifer Johnson
Jennifer Johnson
Eboni Lance
Eboni Lance
Eboni Lance
Paul H. Lipkin
Paul H. Lipkin
Paul H. Lipkin
Deepa U. Menon
Deepa U. Menon
Deepa U. Menon
Deepa U. Menon
Tiffany McIntyre
Tiffany McIntyre
Meghna Rajaprakash
Meghna Rajaprakash
Albert Recio
Albert Recio
Harvey S. Singer
Harvey S. Singer
Harvey S. Singer
Lindsay Smegal
Lindsay Smegal
Constance L. Smith-Hicks
Constance L. Smith-Hicks
Hilary Vernon
Hilary Vernon
Anna Maria Wilms Floet
Anna Maria Wilms Floet
Joyce Wong
Joyce Wong
Joyce Wong
Karina Yelin
Karina Yelin
Mary L. O’Connor Leppert
Mary L. O’Connor Leppert
Mary L. O’Connor Leppert
Mary L. O’Connor Leppert
T. Andrew Zabel
T. Andrew Zabel
Anne M. Comi
Anne M. Comi
Anne M. Comi
Anne M. Comi
author_sort Pooja Vedmurthy
collection DOAJ
description BackgroundThe COVID-19 pandemic uniquely affects patients with neurologic and developmental disabilities at the Kennedy Krieger Institute. These patients are at increased risk of co-morbidities, increasing their risk of contracting COVID-19. Disruptions in their home and school routines, and restrictions accessing crucial healthcare services has had a significant impact.MethodsA Pandemic Intake questionnaire regarding COVID-19 related medical concerns of guardians of patients was distributed using Qualtrics. Data from May-December 2020 were merged with demographic information of patients from 10 clinics (Center for Autism and Related Disorders (CARD), Neurology, Epigenetics, Neurogenetics, Center for Development and Learning (CDL) Sickle Cell, Spinal Cord, Sturge-Weber syndrome (SWS), Tourette's, and Metabolism). A provider feedback survey was distributed to program directors to assess the effectiveness of this intervention.ResultsAnalysis included responses from 1643 guardians of pediatric patients (mean age 9.5 years, range 0–21.6 years). Guardians of patients in more medically complicated clinics reported perceived increased risk of COVID-19 (p < 0.001) and inability to obtain therapies (p < 0.001) and surgeries (p < 0.001). Guardian responses from CARD had increased reports of worsening behavior (p = 0.01). Providers increased availability of in-person and virtual therapies and visits and made referrals for additional care to address this. In a survey of medical providers, five out of six program directors who received the responses to this survey found this questionnaire helpful in caring for their patients.ConclusionThis quality improvement project successfully implemented a pre-visit questionnaire to quickly assess areas of impact of COVID-19 on patients with neurodevelopmental disorders. During the pandemic, results identified several major areas of impact, including patient populations at increased risk for behavioral changes, sleep and/or disruptions of medical care. Most program directors reported improved patient care as a result.
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spelling doaj.art-def6c26024944610819643db055fa8462023-01-03T02:17:00ZengFrontiers Media S.A.Frontiers in Rehabilitation Sciences2673-68612022-10-01310.3389/fresc.2022.934558934558Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemicPooja Vedmurthy0Pooja Vedmurthy1Connor Murray2Connor Murray3Belinda Chen4Akua Asiedu5Kristin Baranano6Mihee Bay7Mihee Bay8Mihee Bay9Harolyn Belcher10Harolyn Belcher11Harolyn Belcher12Harolyn Belcher13Harolyn Belcher14Vera Burton15Charles Conlon16Amena Fine17Amena Fine18Ryan Gill19Ryan Gill20Ryan Gill21Jacqueline Harris22Jacqueline Harris23Jacqueline Harris24Jacqueline Harris25Khaylynn Hart26Khaylynn Hart27Khaylynn Hart28Shannon Inches29Shannon Inches30Jennifer Johnson31Jennifer Johnson32Eboni Lance33Eboni Lance34Eboni Lance35Paul H. Lipkin36Paul H. Lipkin37Paul H. Lipkin38Deepa U. Menon39Deepa U. Menon40Deepa U. Menon41Deepa U. Menon42Tiffany McIntyre43Tiffany McIntyre44Meghna Rajaprakash45Meghna Rajaprakash46Albert Recio47Albert Recio48Harvey S. Singer49Harvey S. Singer50Harvey S. Singer51Lindsay Smegal52Lindsay Smegal53Constance L. Smith-Hicks54Constance L. Smith-Hicks55Hilary Vernon56Hilary Vernon57Anna Maria Wilms Floet58Anna Maria Wilms Floet59Joyce Wong60Joyce Wong61Joyce Wong62Karina Yelin63Karina Yelin64Mary L. O’Connor Leppert65Mary L. O’Connor Leppert66Mary L. O’Connor Leppert67Mary L. O’Connor Leppert68T. Andrew Zabel69T. Andrew Zabel70Anne M. Comi71Anne M. Comi72Anne M. Comi73Anne M. Comi74Department of Neurology, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesCenter for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United StatesCenter for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesCenter for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesCenter for Diversity in Public Health Leadership Training, Kennedy Krieger Institute, Baltimore, MD, United StatesOffice for Health Equity, Inclusion and Diversity, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United StatesCenter for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neuropsychology, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesCenter for Autism and Related Disorders, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States0International Center for Spinal Cord Injury, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesCenter for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesCenter for Autism and Related Disorders, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States1Department of Physical Medicine and Rehabilitation, Johns Hopkins University School of Medicine, Baltimore, MD, United States2Department of Genetic Medicine, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States2Department of Genetic Medicine, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesCenter for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesCenter for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesCenter for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neuropsychology, Kennedy Krieger Institute, Baltimore, MD, United States3Department of Psychiatry and Behavioral Sciences, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United StatesDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United StatesBackgroundThe COVID-19 pandemic uniquely affects patients with neurologic and developmental disabilities at the Kennedy Krieger Institute. These patients are at increased risk of co-morbidities, increasing their risk of contracting COVID-19. Disruptions in their home and school routines, and restrictions accessing crucial healthcare services has had a significant impact.MethodsA Pandemic Intake questionnaire regarding COVID-19 related medical concerns of guardians of patients was distributed using Qualtrics. Data from May-December 2020 were merged with demographic information of patients from 10 clinics (Center for Autism and Related Disorders (CARD), Neurology, Epigenetics, Neurogenetics, Center for Development and Learning (CDL) Sickle Cell, Spinal Cord, Sturge-Weber syndrome (SWS), Tourette's, and Metabolism). A provider feedback survey was distributed to program directors to assess the effectiveness of this intervention.ResultsAnalysis included responses from 1643 guardians of pediatric patients (mean age 9.5 years, range 0–21.6 years). Guardians of patients in more medically complicated clinics reported perceived increased risk of COVID-19 (p < 0.001) and inability to obtain therapies (p < 0.001) and surgeries (p < 0.001). Guardian responses from CARD had increased reports of worsening behavior (p = 0.01). Providers increased availability of in-person and virtual therapies and visits and made referrals for additional care to address this. In a survey of medical providers, five out of six program directors who received the responses to this survey found this questionnaire helpful in caring for their patients.ConclusionThis quality improvement project successfully implemented a pre-visit questionnaire to quickly assess areas of impact of COVID-19 on patients with neurodevelopmental disorders. During the pandemic, results identified several major areas of impact, including patient populations at increased risk for behavioral changes, sleep and/or disruptions of medical care. Most program directors reported improved patient care as a result.https://www.frontiersin.org/articles/10.3389/fresc.2022.934558/fullpandemic (COVID-19)pediatrics - childrenrehabilitationSARS – CoV – 2neurodevelomental disorders
spellingShingle Pooja Vedmurthy
Pooja Vedmurthy
Connor Murray
Connor Murray
Belinda Chen
Akua Asiedu
Kristin Baranano
Mihee Bay
Mihee Bay
Mihee Bay
Harolyn Belcher
Harolyn Belcher
Harolyn Belcher
Harolyn Belcher
Harolyn Belcher
Vera Burton
Charles Conlon
Amena Fine
Amena Fine
Ryan Gill
Ryan Gill
Ryan Gill
Jacqueline Harris
Jacqueline Harris
Jacqueline Harris
Jacqueline Harris
Khaylynn Hart
Khaylynn Hart
Khaylynn Hart
Shannon Inches
Shannon Inches
Jennifer Johnson
Jennifer Johnson
Eboni Lance
Eboni Lance
Eboni Lance
Paul H. Lipkin
Paul H. Lipkin
Paul H. Lipkin
Deepa U. Menon
Deepa U. Menon
Deepa U. Menon
Deepa U. Menon
Tiffany McIntyre
Tiffany McIntyre
Meghna Rajaprakash
Meghna Rajaprakash
Albert Recio
Albert Recio
Harvey S. Singer
Harvey S. Singer
Harvey S. Singer
Lindsay Smegal
Lindsay Smegal
Constance L. Smith-Hicks
Constance L. Smith-Hicks
Hilary Vernon
Hilary Vernon
Anna Maria Wilms Floet
Anna Maria Wilms Floet
Joyce Wong
Joyce Wong
Joyce Wong
Karina Yelin
Karina Yelin
Mary L. O’Connor Leppert
Mary L. O’Connor Leppert
Mary L. O’Connor Leppert
Mary L. O’Connor Leppert
T. Andrew Zabel
T. Andrew Zabel
Anne M. Comi
Anne M. Comi
Anne M. Comi
Anne M. Comi
Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic
Frontiers in Rehabilitation Sciences
pandemic (COVID-19)
pediatrics - children
rehabilitation
SARS – CoV – 2
neurodevelomental disorders
title Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic
title_full Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic
title_fullStr Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic
title_full_unstemmed Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic
title_short Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic
title_sort pandemic intake questionnaire to improve quality effectiveness and efficiency of outpatient neurologic and developmental care at the kennedy krieger institute during the covid 19 pandemic
topic pandemic (COVID-19)
pediatrics - children
rehabilitation
SARS – CoV – 2
neurodevelomental disorders
url https://www.frontiersin.org/articles/10.3389/fresc.2022.934558/full
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AT annamariawilmsfloet pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT joycewong pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT joycewong pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT joycewong pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT karinayelin pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT karinayelin pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT maryloconnorleppert pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT maryloconnorleppert pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT maryloconnorleppert pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT maryloconnorleppert pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT tandrewzabel pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT tandrewzabel pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT annemcomi pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT annemcomi pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT annemcomi pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic
AT annemcomi pandemicintakequestionnairetoimprovequalityeffectivenessandefficiencyofoutpatientneurologicanddevelopmentalcareatthekennedykriegerinstituteduringthecovid19pandemic