Patient pathways for rare diseases in Europe: ataxia as an example

Patient pathways for rare diseases in Europe: ataxia as an example

Abstract Background Progressive ataxias are rare and complex neurological disorders that represent a challenge for the clinicians to diagnose and manage them. This study explored the patient pathways of individuals attending specialist ataxia centres (SAC) compared with non–specialist settings. We i...

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Bibliographic Details
Main Authors: Julie Vallortigara, Julie Greenfield, Barry Hunt, Deborah Hoffman, Carola Reinhard, Holm Graessner, Antonio Federico, Vinciane Quoidbach, Steve Morris, Paola Giunti
Format: Article
Language:English
Published: BMC 2023-10-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Ataxia
Specialist centre
Care pathway
Patient survey
Rare diseases
Online Access:https://doi.org/10.1186/s13023-023-02907-y

Internet

https://doi.org/10.1186/s13023-023-02907-y

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