Data sharing in neurodegenerative disease research: challenges and learnings from the innovative medicines initiative public-private partnership model

Data sharing in neurodegenerative disease research: challenges and learnings from the innovative medicines initiative public-private partnership model

Efficient data sharing is hampered by an array of organizational, ethical, behavioral, and technical challenges, slowing research progress and reducing the utility of data generated by clinical research studies on neurodegenerative diseases. There is a particular need to address differences between...

Full description

Bibliographic Details
Main Authors: Angela Bradshaw, Nigel Hughes, David Vallez-Garcia, Davit Chokoshvili, Andrew Owens, Clint Hansen, Kirsten Emmert, Walter Maetzler, Lewis Killin, Rodrigo Barnes, Anthony J. Brookes, Pieter Jelle Visser, Martin Hofmann-Apitius, Carlos Diaz, Lennert Steukers
Format: Article
Language:English
Published: Frontiers Media S.A. 2023-07-01
Series:Frontiers in Neurology
Subjects:
neurodegenerative disease
data sharing
innovative medicines initiative
GDPR
digital endpoint
real world data
Online Access:https://www.frontiersin.org/articles/10.3389/fneur.2023.1187095/full

Internet

https://www.frontiersin.org/articles/10.3389/fneur.2023.1187095/full

Similar Items