Genetic disease in the family: trajectories and experiences in public health services

Abstract Objective: To identify the trajectories and experiences of families of children with genetic diseases in health services. Method: A qualitative study, with data collected through interviews with 15 families and caregivers of children with Genetic Disease, living in the northern region of...

Full description

Bibliographic Details
Main Authors: Laura Helena Gerber Franciscatto, Mara Regina Santos da Silva, Alessandro Marques dos Santos, Adriane Maria Netto de Oliveira, Keterlin Salvador
Format: Article
Language:English
Published: Universidade Federal do Rio de Janeiro 2019-10-01
Series:Escola Anna Nery
Subjects:
Online Access:http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1414-81452020000100204&tlng=en