Genetic disease in the family: trajectories and experiences in public health services

Genetic disease in the family: trajectories and experiences in public health services

Abstract Objective: To identify the trajectories and experiences of families of children with genetic diseases in health services. Method: A qualitative study, with data collected through interviews with 15 families and caregivers of children with Genetic Disease, living in the northern region of...

Full description

Bibliographic Details
Main Authors:	Laura Helena Gerber Franciscatto, Mara Regina Santos da Silva, Alessandro Marques dos Santos, Adriane Maria Netto de Oliveira, Keterlin Salvador
Format:	Article
Language:	English
Published:	Universidade Federal do Rio de Janeiro 2019-10-01
Series:	Escola Anna Nery
Subjects:	Genetics Nursing Health services Family Qualitative Research
Online Access:	http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1414-81452020000100204&tlng=en

Similar Items

Waves of family hope: narratives of families in the context of pediatric chronic illness
by: Ana Carolina Andrade Biaggi Leite, et al.
Published: (2021-11-01)

Potentialities and deficiencies of qualitative research with families Potencialidades y debilidades de la investigación cualitativa con familias Potencialidades e debilidades da investigação qualitativa com famílias
by: Geisa dos Santos Luz, et al.
Published: (2012-08-01)

THE FAMILY’S FEELINGS IN INTERACTION WITH THE NURSING TEAM
by: Teresa Cristina Gioia Schimidt, et al.
Published: (2012-06-01)

Patients’ and Family Members’ Experiences of a Novel Nurse-Led Intervention Using Family Conversations Targeting Families Afflicted by Chronic Non-Cancer Pain
by: Rønne PF, et al.
Published: (2023-09-01)

Building a new life: a qualitative study of how family carers deal with significant changes
by: Wendy Duggleby, et al.
Published: (2022-07-01)

The Obstacles against Nurse-Family Communication in Family-Centered Care in Neonatal Intensive Care Unit: a Qualitative Study
by: Zahra Hadian Shirazi, et al.
Published: (2015-09-01)

Nurses’ experiences of the ethical values of home care nursing: A qualitative study
by: Masoume Arab, et al.
Published: (2022-07-01)

Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases
by: Joice Soares Campos, et al.
Published: (2021-06-01)

The Facilitators and Barriers to Communication between Nurses and Family Member in Intensive Care Unit in Kerman, Iran
by: Laleh loghmani, et al.
Published: (2014-02-01)

Nurses' experiences of provision family‐centred care in the postresuscitation period: A qualitative study
by: Mahnaz Zali, et al.
Published: (2023-11-01)

Explanatory models of families of children with type 1 diabetes mellitus
by: Isa Ribeiro de Oliveira Dantas, et al.
Published: (2020-07-01)

Existential transformations in the process of facing amyotrophic lateral sclerosis by the family caregiver
by: Lays Pedrosa dos Santos Costa, et al.
Published: (2021-07-01)

Experiences in the training of specialist family and community nurses: a qualitative study
by: Francisca Sánchez-Muñoz, et al.
Published: (2023-05-01)

The Role of Nurses in Coping Process of Family Caregivers of Vegetative Patients: A Qualitative Study
by: Zahra Imanigoghary, et al.
Published: (2017-01-01)

CALGARY MODEL OF FAMILY ASSESSMENT: EXPERIENCE IN A COMMUNITY SERVICE PROJECT
by: Hellen Pollyanna Mantelo Cecilio, et al.
Published: (2014-09-01)

Focus group in the development of concepts for a Nursing model: experience report
by: Jaquiele Jaciara Kegler, et al.
Published: (2023-10-01)

Family experience of living with children and adolescents with bladder and bowel dysfunction
by: Nayara dos Santos Rodrigues, et al.
Published: (2020-10-01)

Nurses’ challenges when supporting the family of patients with ALS in specialized palliative home care: A qualitative study
by: Alexandra Beyermann, et al.
Published: (2023-12-01)

Expectations for safety of nursing home residents and their family members during the COVID-19 pandemic: a qualitative study
by: Baojuan Cui, et al.
Published: (2023-10-01)

A qualitative study of the interaction experiences between family caregivers and community nurses for disabled elderly people at home
by: Panpan Guo, et al.
Published: (2023-04-01)

Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges
by: Silvia Gonella, et al.
Published: (2021-01-01)

The comparison of nurses and families' viewpoint of family-centered caring in Khalkhal Hospital, 2017
by: Aziz Kamran, et al.
Published: (2017-01-01)

Family systems nursing conversations: influences on families with stroke
by: Susanna Pusa, et al.
Published: (2022-05-01)

Family orientation group as a strategy for care in chemical codependency
by: Michele Peixoto da Silva, et al.
Published: (2019-10-01)

Conditional freedom: repercussions in the family living with a member on peritoneal dialysis
by: Arlete Maria Brentano Timm, et al.
Published: (2015-09-01)

EXPERIENCES OF MOTHERS ACCOMPANYING HOSPITALIZED CHILDREN UNIT IN PEDIATRIC CLINIC
by: Luciano Marques dos Santos, et al.
Published: (2014-05-01)

Family Nursing Care during the Transition to Parenthood: A Scoping Review
by: Bruna César-Santos, et al.
Published: (2024-02-01)

Guidelines for family caregivers of elderly dependent to at home care.
by: Neusa Maria Azevedo, et al.
Published: (2009-04-01)

Death and dying of newborns and children: relationships between nursing and family according to Travelbee
by: Jocellem Alves de Medeiros, et al.
Published: (2021-10-01)

Experiences of families of public safety personnel: a systematic review protocol of qualitative evidence
by: Janette Leroux, et al.
Published: (2021-09-01)

Wright LM, Leahey M. Nurses and families: a guide to assessment and intervention in family. 5th ed. São Paulo (SP): Roca; 2012
by: Ronaldo de Sousa Moreira Baia, et al.
Published: (2014-12-01)

Opportunities and challenges of integrating genetics education about human diversity into public health nurses’ responsibilities in Japan
by: Hiromi Goda, et al.
Published: (2019-12-01)

Voices to be heard: Understanding family perspectives in forensic care trajectories
by: Sara Rowaert, et al.
Published: (2022-12-01)

Nurse-led family-based approach in primary health care for patients with type 2 diabetes mellitus: a qualitative study
by: Khadija A. Matrook, et al.
Published: (2024-12-01)

THE CARE OF NURSING TO THE FAMILY: A BIBLIOGRAPHICAL STUDY
by: Klever Souza Silva, et al.
Published: (2004-08-01)

Family transitions to homelessness: a qualitative approach
by: Amélia Simões Figueiredo, et al.

Implications of the COVID-19 Pandemic on the Family Structural Dimensions: A Correlational Study
by: Margarida Silva, et al.
Published: (2023-08-01)

The aging of families with members with intellectual disabilities
by: Renata Balieiro Takebayashi, et al.

Nursing care in family planning: perceptions of professionals and couples attended
by: A. A. S. Jorge, et al.
Published: (2018-06-01)

Nursing care in family planning: perceptions of professionals and couples attended
by: A. A. S. Jorge, et al.
Published: (2018-06-01)