Identifying children with Cystic Fibrosis in population-scale routinely collected data in Wales

Introduction The challenges in identifying a cohort of people with a rare condition can be addressed by routinely collected, population-scale electronic health record (eHR) data, which provide large volumes of data at a national level. This paper describes the challenges of accurately identifying...

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Bibliographic Details
Main Authors: Rowena Griffiths, Daniela K Schlüter, Ashley Akbari, Rebecca Cosgriff, David Tucker, David Taylor-Robinson
Format: Article
Language:English
Published: Swansea University 2020-08-01
Series:International Journal of Population Data Science
Subjects:
Online Access:https://ijpds.org/article/view/1346