Psychometric Validation of the Haemo-QOL-A in Participants with Hemophilia A Treated with Gene Therapy

Psychometric Validation of the Haemo-QOL-A in Participants with Hemophilia A Treated with Gene Therapy

Jennifer Quinn,1 Kathleen A Delaney,2 Wing Yen Wong,2 Wolfgang Miesbach,3 Monika Bullinger4 1BioMarin Pharmaceuticals UK Ltd, London, UK; 2BioMarin Pharmaceutical Inc., Novato, CA, USA; 3Medical Clinic 2, Institute of Transfusion Medicine, University Hospital Frankfurt, Frankfurt, Germany; 4Departme...

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Bibliographic Details
Main Authors: Quinn J, Delaney KA, Wong WY, Miesbach W, Bullinger M
Format: Article
Language:English
Published: Dove Medical Press 2022-07-01
Series:Patient Related Outcome Measures
Subjects:
severe hemophilia a
gene therapy
quality of life
haemo-qol-a
psychometric testing
clinically important difference
Online Access:https://www.dovepress.com/psychometric-validation-of-the-haemo-qol-a-in-participants-with-hemoph-peer-reviewed-fulltext-article-PROM

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https://www.dovepress.com/psychometric-validation-of-the-haemo-qol-a-in-participants-with-hemoph-peer-reviewed-fulltext-article-PROM

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