Living with a genetic, undiagnosed or rare disease: A longitudinal journalling study through the COVID‐19 pandemic

Abstract Introduction COVID‐19 changed the way we lived with uncertainty from the outset as the pandemic impacted every aspect of our lives from well‐being, socializing to accessing healthcare. For people in vulnerable populations, such as those with genetic, undiagnosed and rare disorders, the expe...

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Bibliographic Details
Main Authors: Malia Byun, Hollie Feller, Monica Ferrie, Stephanie Best
Format: Article
Language:English
Published: Wiley 2022-10-01
Series:Health Expectations
Subjects:
Online Access:https://doi.org/10.1111/hex.13405