Living with a genetic, undiagnosed or rare disease: A longitudinal journalling study through the COVID‐19 pandemic
Abstract Introduction COVID‐19 changed the way we lived with uncertainty from the outset as the pandemic impacted every aspect of our lives from well‐being, socializing to accessing healthcare. For people in vulnerable populations, such as those with genetic, undiagnosed and rare disorders, the expe...
Main Authors: | Malia Byun, Hollie Feller, Monica Ferrie, Stephanie Best |
---|---|
Format: | Article |
Language: | English |
Published: |
Wiley
2022-10-01
|
Series: | Health Expectations |
Subjects: | |
Online Access: | https://doi.org/10.1111/hex.13405 |
Similar Items
-
The diagnostic odyssey: insights from parents of children living with an undiagnosed condition
by: Alicia Bauskis, et al.
Published: (2022-06-01) -
Persistent suffering: Living experiences of patients with rare disease: An interpretative phenomenological study
by: Fatemeh Rezaei, et al.
Published: (2023-01-01) -
Rare and undiagnosed: Daunting challenges for patients, doctors, and researchers alike
by: Dwane UnRuh
Published: (2022-11-01) -
On symposia: LiveJournal and the shape of fannish discourse
by: Rebecca Lucy Busker
Published: (2008-09-01) -
A Phenomenological Study to Explore the Lived Experience of Patient Living with Mental Illness
by: S. Veera Jyothi, et al.
Published: (2023-12-01)