FASD: The Living Experience of People with Fetal Alcohol Spectrum Disorder—Results of an Anonymous Survey

FASD: The Living Experience of People with Fetal Alcohol Spectrum Disorder—Results of an Anonymous Survey

Fetal Alcohol Spectrum Disorder (FASD) is considered a lifelong disability that has been framed with neurobiological descriptions focused on the brain. These are important features but fail to tell the story of living with FASD. By surveying those with FASD, this work expanded upon prior survey work...

Mô tả đầy đủ

Chi tiết về thư mục
Những tác giả chính:	Emily Hargrove, C. J. Lutke, Katrina Griffin, Myles Himmelreich, Justin Mitchell, Anique Lutke, Peter Choate
Định dạng:	Bài viết
Ngôn ngữ:	English
Được phát hành:	MDPI AG 2024-05-01
Loạt:	Disabilities
Những chủ đề:	Fetal Alcohol Spectrum Disorder FASD FASD living experiences anonymous survey stigma and FASD self-stigma and FASD
Truy cập trực tuyến:	https://www.mdpi.com/2673-7272/4/2/22

Những quyển sách tương tự

The Invisible Struggle: Parents with FASD, the Courts and the Child Intervention System
Bằng: Peter Choate, et al.
Được phát hành: (2024-09-01)

IT’S NOT A GLITCH, IT’S MY LIFE!
Bằng: Mikayla Goodwin-Reid
Được phát hành: (2024-05-01)

The Influence of FASD on Psychiatric Disorders
Bằng: Alicja Staszek, et al.
Được phát hành: (2025-03-01)

Editorial: Perspectives and recent advances in Fetal Alcohol Spectrum Disorders research
Bằng: Lisa K. Akison, et al.
Được phát hành: (2023-12-01)

Reflections of experts by experience and research team members on research and development about a sensitive issue that attracts stigma
Được phát hành: (2023-02-01)

Evaluating the Difference in Neuropsychological Profiles of Individuals with FASD Based on the Number of Sentinel Facial Features: A Service Evaluation of the FASD UK National Clinic Database
Bằng: Bethany M. Webster, et al.
Được phát hành: (2023-01-01)

Risk and Resilience Variants in the Retinoic Acid Metabolic and Developmental Pathways Associated with Risk of FASD Outcomes
Bằng: Leo McKay, et al.
Được phát hành: (2024-05-01)

Stigmatisation, Exaggeration, and Contradiction: An Analysis of Scientific and Clinical Content in Canadian Print Media Discourse About Fetal Alcohol Spectrum Disorder
Bằng: John Aspler, et al.
Được phát hành: (2019-03-01)

Ethanol-induced cerebellar transcriptomic changes in a postnatal model of fetal alcohol spectrum disorders: Focus on disease onset
Bằng: Kalee N. Holloway, et al.
Được phát hành: (2023-03-01)

Low-dose prenatal alcohol exposure modulates weight gain and eliminates fractalkine expression in e14.5 mouse embryos
Bằng: Jordyn Karliner, et al.
Được phát hành: (2017-07-01)

Sleep and Cognition in Children with Fetal Alcohol Spectrum Disorders (FASD) and Children with Autism Spectrum Disorders (ASD)
Bằng: Rabya Mughal, et al.
Được phát hành: (2020-11-01)

The Impact of Oxidative Stress on the Epigenetics of Fetal Alcohol Spectrum Disorders
Bằng: Sergio Terracina, et al.
Được phát hành: (2024-03-01)

Fetal Alcohol Spectrum Disorders and their Transmission through Genetic and Epigenetic Mechanisms
Bằng: Edward A Mead, et al.
Được phát hành: (2014-06-01)

Exercise in Adolescence Enhances Callosal White Matter Refinement in the Female Brain in a Rat Model of Fetal Alcohol Spectrum Disorders
Bằng: Katrina A. Milbocker, et al.
Được phát hành: (2023-03-01)

Towards a Distinct Sleep and Behavioural Profile of Fetal Alcohol Spectrum Disorder (FASD): A Comparison between FASD, Autism and Typically Developing Children
Bằng: Amy A. Benson, et al.
Được phát hành: (2023-05-01)

A systematic review of prevention interventions to reduce prenatal alcohol exposure and fetal alcohol spectrum disorder in indigenous communities
Bằng: Martyn Symons, et al.
Được phát hành: (2018-11-01)

GLIA AND NEURODEVELOPMENT: FOCUS ON FETAL ALCOHOL SPECTRUM DISORDERS
Bằng: Marina eGuizzetti, et al.
Được phát hành: (2014-11-01)

Das Fetale Alkoholsyndrom als pädagogische Herausforderung
Bằng: Friederike Gödecke, et al.
Được phát hành: (2024-04-01)

Fetal alcohol syndrome – causes, diagnostic criteria and prevalence
Bằng: Agata Horecka-Lewitowicz, et al.
Được phát hành: (2014-04-01)

“Taking part in the project has really changed our experience as a family” investigating parents’ experience of participation in a study to screen for fetal alcohol spectrum disorder
Bằng: Robyn McCarthy, et al.
Được phát hành: (2024-05-01)

The Marulu Strategy 2008–2012: overcoming Fetal Alcohol Spectrum Disorder (FASD) in the Fitzroy Valley
Bằng: James P. Fitzpatrick, et al.
Được phát hành: (2017-10-01)

Heated Behaviour in the Classroom for Children with FASD: The Relationship between Characteristics Associated with ADHD, ODD and ASD, Hot Executive Function and Classroom Based Reward Systems
Bằng: Andrea Carrick, et al.
Được phát hành: (2023-04-01)

An evaluation of a multi-site fetal alcohol spectrum disorder models of care project
Bằng: Kirsten R. Panton, et al.
Được phát hành: (2023-07-01)

Function of Thymosin Beta-4 in Ethanol-Induced Microglial Activation
Bằng: Jianfeng Zhang, et al.
Được phát hành: (2016-05-01)

Development of a Model of Care resource for FASD in the justice system
Bằng: Fleur E.P. van Dooren, et al.
Được phát hành: (2024-12-01)

Knowledge, attitudes, practices, and beliefs regarding prenatal alcohol consumption among women in Leyte, the Philippines
Bằng: Alice M. Huang, et al.
Được phát hành: (2023-08-01)

A comparison of the different animal models of Fetal Alcohol Spectrum Disorders and their use in studying complex behaviors.
Bằng: Anna R Patten, et al.
Được phát hành: (2014-09-01)

Genetics and epigenetics of fetal alcohol spectrum disorders.
Bằng: Stephen eMason, et al.
Được phát hành: (2015-04-01)

Atypical developmental trajectories of white matter microstructure in prenatal alcohol exposure: Preliminary evidence from neurite orientation dispersion and density imaging
Bằng: Blake A. Gimbel, et al.
Được phát hành: (2023-04-01)

Fetal alcohol spectrum disorders prevention and clinical guidelines research - workshop report
Bằng: Tracey Pérez Koehlmoos, et al.
Được phát hành: (2024-08-01)

Children with FASD—Evolving Patterns of Developmental Problems and Intervention Costs in Ages 0 through 16 in Finland
Bằng: Laura Mirjami Jolma, et al.
Được phát hành: (2023-04-01)

Detection of Children/Youth With Fetal Alcohol Spectrum Disorder Through Eye Movement, Psychometric, and Neuroimaging Data
Bằng: Chen Zhang, et al.
Được phát hành: (2019-02-01)

Reducing the risk of prenatal alcohol exposure and FASD through social services: promising results from the FAR SEAS pilot project
Bằng: Katarzyna Okulicz-Kozaryn, et al.
Được phát hành: (2023-09-01)

A tornado in the family: fetal alcohol spectrum disorder and aggression during childhood and adolescence: a scoping review
Bằng: Maude Champagne, et al.
Được phát hành: (2023-06-01)

Sex differences in the transcriptome of extracellular vesicles secreted by fetal neural stem cells and effects of chronic alcohol exposure
Bằng: Dae D. Chung, et al.
Được phát hành: (2023-04-01)

Binge-like Prenatal Ethanol Exposure Causes Impaired Cellular Differentiation in the Embryonic Forebrain and Synaptic and Behavioral Defects in Adult Mice
Bằng: Shivakumar Subbanna, et al.
Được phát hành: (2022-06-01)

Postnatal Ethanol-Induced Neurodegeneration Involves CB1R-Mediated β-Catenin Degradation in Neonatal Mice
Bằng: Shivakumar Subbanna, et al.
Được phát hành: (2020-05-01)

Effects of Genetics and Sex on Acute Gene Expression Changes in the Hippocampus Following Neonatal Ethanol Exposure in BXD Recombinant Inbred Mouse Strains
Bằng: Jessica A. Baker, et al.
Được phát hành: (2022-11-01)

Automated cerebellar segmentation: Validation and application to detect smaller volumes in children prenatally exposed to alcohol
Bằng: Valerie A. Cardenas, et al.
Được phát hành: (2014-01-01)

Nutritional status of a group of polish children with FASD: A retrospective study
Bằng: Agnieszka Domin, et al.
Được phát hành: (2023-05-01)