Barriers to the Diagnosis, Care, and Management of Pediatric Patients With Ehlers-Danlos Syndrome in the United States: A Qualitative Analysis
Objectives: Ehlers-Danlos Syndromes (EDS) are a family of heritable connective tissue diseases. Primary practitioners are capable of diagnosing and managing EDS; however, few are knowledgeable and comfortable enough to see patients with EDS, resulting in delays in diagnosis and care. This study expl...
| Glavni autori: | , , |
|---|---|
| Format: | Članak |
| Jezik: | English |
| Izdano: |
SAGE Publishing
2023-11-01
|
| Serija: | Global Pediatric Health |
| Online pristup: | https://doi.org/10.1177/2333794X231212081 |