Societal perspectives on disease and treatment attributes characterizing rare diseases: a qualitative study from the United States

Societal perspectives on disease and treatment attributes characterizing rare diseases: a qualitative study from the United States

Abstract Purpose Under a societal perspective, disease and treatment attributes that the general public deem important should be considered within value frameworks. The objective was to investigate how members of the general public value attributes beyond health gains and healthcare system expenditu...

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Bibliographic Details
Main Authors: Shelagh M. Szabo, Ivana F. Audhya, David Feeny, Peter Neumann, Daniel C. Malone, Katherine L. Gooch
Format: Article
Language:English
Published: SpringerOpen 2022-01-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Value of healthcare
Value frameworks
Preferences
Rare diseases
Pediatric diseases
Online Access:https://doi.org/10.1186/s41687-022-00413-6

Internet

https://doi.org/10.1186/s41687-022-00413-6

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