Perspectives of Rare Disease Social Media Group Participants on Engaging With Genetic Counselors: Mixed Methods Study

Perspectives of Rare Disease Social Media Group Participants on Engaging With Genetic Counselors: Mixed Methods Study

BackgroundSocial media provides a potential avenue for genetic counselors to address gaps in access to reliable genetics information for rare disease communities. However, only limited research has examined patient and family attitudes toward engaging with genetic counselors...

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Bibliographic Details
Main Authors: Megan Yabumoto, Emily Miller, Anoushka Rao, Holly K Tabor, Kelly E Ormond, Meghan C Halley
Format: Article
Language:English
Published: JMIR Publications 2022-12-01
Series:Journal of Medical Internet Research
Online Access:https://www.jmir.org/2022/12/e42084

Internet

https://www.jmir.org/2022/12/e42084

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