Diagnostic needs for rare diseases and shared prediagnostic phenomena: Results of a German-wide expert Delphi survey.

Diagnostic needs for rare diseases and shared prediagnostic phenomena: Results of a German-wide expert Delphi survey.

BACKGROUND:Worldwide approximately 7,000 rare diseases have been identified. Accordingly, 4 million individuals live with a rare disease in Germany. The mean time to diagnosis is about 6 years and patients receive several incorrect diagnoses during this time. A multiplicity of factors renders diagno...

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Bibliographic Details
Main Authors: Susanne Blöß, Christian Klemann, Ann-Katrin Rother, Sandra Mehmecke, Ulrike Schumacher, Urs Mücke, Martin Mücke, Christiane Stieber, Frank Klawonn, Xiaowei Kortum, Werner Lechner, Lorenz Grigull
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2017-01-01
Series:PLoS ONE
Online Access:http://europepmc.org/articles/PMC5325301?pdf=render

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http://europepmc.org/articles/PMC5325301?pdf=render

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